The Public Health Agency encourages people to confirm their decision to save lives this Organ Donation Week
This Organ Donation Week (23 – 29 September) we are celebrating the fact that the NHS Organ Donor Register has been saving and transforming lives for 30 years through the gift of organ donation.
The Organ Donor Register was set up to promote organ donation and allow people to record their decision to donate. Since its creation in 1994, thousands of lives have been saved thanks to people agreeing to donate their organs after death by confirming their decision on the NHS Organ Donor Register.
However, more people than ever before are in need for a life-saving transplant across the UK, with more than 7,600 people on the active waiting list, including 155 in Northern Ireland – so it’s vital that people confirm their organ donation decision to save lives.
55% (1,082,893) of people in Northern Ireland have already declared their decision to donate through the NHS Organ Donor Register, which is the best way for their family to know what they want. 9 out of 10 families will support organ donation if their loved one had confirmed their decision on the NHS Organ Donor Register. However, to donate organs after death, a person needs to die in hospital in specific circumstances. This applies to only 1 in every 100 people, highlighting how important every registration and family conversation is.
With the recent law change around organ donation, it is important to remember that it is assumed that when someone dies in the circumstances where they could be a donor, that they agree to donate if they haven’t officially opted out. However, no-one is automatically added to the Organ Donor Register. That’s why everyone is encouraged to continue to confirm their decision, whatever it is, as their family will be consulted before donation goes ahead.
Aidan Dawson, Chief Executive of the Public Health Agency explained:
“Confirming your decision to donate on the NHS Organ Donor Register makes it clear to your family that you want to be an organ donor, leaving them certain of your decision at what is a difficult and emotional time. We encourage people to confirm their decision on the register today in order to save more lives now and in the future.”
Paddy McNamara from Bangor received a lifesaving double-lung transplant in March 2023. Reiterating the importance of organ donation he said:
“When diagnosed with Idiopathic pulmonary fibrosis (IPF) in 2018, even taking a breath, something we take for granted, was difficult. Now I am able to enjoy life again. I can say that without my donor and their family, I wouldn’t be here today, I am very grateful.”
Sue Duncalf, Regional Manager of the Northern Ireland Organ Donation Services Team, NHS Blood and Transplant commented:
“Every day in the UK, thousands of patients and their families await a life-saving organ donation. This hope often arises from another family making the decision to donate. The Northern Ireland Organ Donation Services Team supports families through that difficult time and we know that when a loved ones’ decision is known, it gives them the confidence to support that decision. And knowing that a loved one has helped to save lives can bring great comfort.
With growing numbers of people in need of transplants, it’s crucial to confirm your organ donation decision on the NHS Organ Donor Register. This Organ Donation Week, please take a moment to register and confirm your choice.”
The Public Health Agency is co-ordinating a range of initiatives across Organ Donation Week, as well as supporting a national mountain climb challenge which will see Slieve Donard and 5 other peaks across the UK being turned pink simultaneously at 14.00 on Friday 27 September.
To find out more and confirm your decision, visit www.organdonationni.info.
Photo caption press pic 1 (l-r): Seána Maguire Spanish teacher Aquinas Grammar; Aidan Dawson CEO Public Health Agency; Health Minister Mike Nesbitt; Dr Dowling Principal Aquinas Grammar
Photo caption (statics): Year 8 pupils from Aquinas Grammar joined the Public Health Agency, specialist nurses from the NI Organ Donation Services Team, transplant consultant Tim Brown, and representatives from local charities (NI Kidney Research Fund, Children’s Heartbeat Trust, and British Heart Foundation NI) to celebrate 30 years of the NHS Organ Donor Register
Seána Maguire has been teaching Spanish in Aquinas for 20 years and has been teaching a module on organ donation to Key Stage 5 pupils (16-18) for the past 7 years.
- It is quick and easy to register your decision on the NHS Organ Donor Register. Call 0300 123 23 23 or visit www.organdonationni.info
- The consent rate for organ donation in 2023/24 was 66%, up from 65% in 2022/23. YTD consent rate (1 April to 31 August 2024) is 78%. The overall consent/authorisation rates for England, Wales, Scotland and Northern Ireland in 2023/24 were 60%, 56%, 61% and 66% respectively
- The total number of deceased donors in NI increased again in 2023/24, with 64 donations proceeding to save lives (up from 59 in 2022/23), the highest number of organ donors so far. YTD (1 April to 31 August 2024) there have been 19 donors
- The number of transplants resulting from the 64 donors in 2023/24 was 168
- There were 72 living donors in 2023/24
- There are 155 people in NI on the waiting list (as at 12 September 2024)
- Over 56% of people have signed the Organ Donor Register as at 12 September 2024:
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- Opt-in: 1,082,893 (55% of population)
- Opt-out: 23,657 (1.2% of population)
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- Each year in Northern Ireland around 10-15 people die while awaiting a transplant (2023/24 there were 13 deaths)
- Only 1% of people die in circumstances where donation is possible, therefore every donation is precious
- Families are always involved in organ donation discussions. You can make things easier for your family by telling them you want to happen.
- Anyone can join the NHS Organ Donor Register, age and medical conditions are not necessarily a barrier to donation.
- One donor can save or transform up to nine lives through organ donation, and saves and transforms even more by donating tissue.
- Only 50% of families agree to donation if they don’t know their loved one’s decision, but this rises to 90% if they know their loved one wanted to donate
- Whatever you decide, the best thing you can do is talk with your loved ones to give them the certainty they need to support your decision
- 90% of people in Northern Ireland support organ donation
NHS Blood and Transplant
NHS Blood and Transplant provides the organ donation service for the UK. They also provide donated tissues, stem cells and cord blood. They are an essential part of the NHS, saving and improving lives through public donation.